Caregivers are required to provide you with all necessary information no matter who you are or what background you have. For example, a clinic may be responsible for offering written information or an interpreter so that you can fully understand exactly how an examination will be performed.
The information must be adapted to your particular circumstances and capabilities. This is important in order for you to be able to understand and be personally involved in your care. You must always have the chance to explain what you want to happen—then it is up to you to decide how much you want to take advantage of that opportunity.
Once you are familiar with the options that are available, you can give your consent or otherwise indicate your preferences. You are always entitled to turn down any care that is offered to you. You can also change your mind after you have approved a certain kind of care.
Children must also be given the opportunity to state their point of view. This may be done together with the parents or legal guardians for a very young child, but the importance of participation by the child increases with age. To be able to be active in his or her care and make decisions, it is important for the child to also understand the information.
What kind of information may be involved?
Caregivers must fully inform you of the following:
- Your state of health.
- The examination, care and treatment options that are available.
- What aids are available.
- When you can expect to obtain care.
- What they hope to achieve with your care and treatment.
- What risks you have for developing various complications or adverse effects.
- How any follow-up care will be arranged.
- The methods available to prevent injury or illness.
- How to contact Försäkringskassan in order to find out about obtaining care in another EEA country or Switzerland.
Sometimes, a family member may need information about your care. Due to confidentiality requirements, a member of your family can be given that kind of information only if they accompany you to an appointment or if you specifically authorize them.
If your life is in danger and the situation is urgent, you will receive care even though you are unconscious or are unable to communicate for some other reason.